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post #1 of 11 (permalink) Old 10-30-2016, 01:19 PM Thread Starter
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Soter Update

Hi everyone, I didn't realize it had been quite so long since I've been back. Time flies when you have an epileptic, allergy ridden, copper storage boy. It's been a long haul since we got the copper storage diagnoses back in May, caring for Soter has become my second full time job but it's all been worth it!

When we got the diagnosis, I think we were a bit in denial. His liver values were through the roof and his copper levels were so high they said if we hadn't caught it we would have lost him in three months or less and even still, the prognosis wasn't good.

We worked out a treatment plan with all the various vets and got to it. Every aspect of our lives revolve around and still revolves around treating Soter and trying to manage all of this.

Every aspect is strictly controlled, food, feeding times, walk times, play time, treats, all food is carefully weighted and measured, all the medication and supplements (9 in total), acupuncture - everything. Thankfully we have the most amazing friends, family, job, church, pharmacists, vets - we are blessed beyond belief with all the caring and concerned people who have worked so hard to manage all of this with us.

Church was hard because it starts at 11:00, we feed Soter at midnight then go to bed and get up at 6:00 because he can't go longer than that without food. This means he has to eat again at noon at the latest so we were either skipping church or running out early all the time. Our amazing Reverend and church friends made a special area in the church for Soter to be crated during service so immediately after, we can go and feed him without having to rush out early and we can even stay after for coffee now! Special events with friends or family are planned around Soters' feeding and medication schedule and my boss has given me variable work hours so I'm able to deal with any issues that arise. We're almost overwhelmed with the support we've received.

We hit a major rough patch this summer. His allergies were out of control, he was covered in hives, an awful red angry rash and losing fur. His usual over the counter medication and apple cider vinegar weren't helping anymore. In a desperate effort to get the allergies under control, our vet wanted to put him on a prescription allergy medication for just three days in the hopes that would be enough to being it back under control. Soter had a bad reaction to the medication and started seizing, he had four seizures just days apart, diarrhea, vomiting, shaking and uncontrollable peeing. It was pretty scary. His acupuncturist rushed right over and got to work, our vet was able to get the vomiting and diarrhea stopped and his system slowly recovered. Since then he's really good. We finally managed to get the allergies back under control and he went 58 days without a seizure.

Before we knew it, 6 months had gone by and it was time for his follow up biopsy. Last time (when we discovered the copper storage) he had an ultrasound guided needle biopsy but this time it was a laparoscopic biopsy. They wanted more and bigger samples so they could better see any changes and have have a better idea of how much damage there was and what the copper levels were at in other parts of his liver. We were expecting the worst but hoping and praying for at least a bit of improvement. Longest two weeks of our lives.

We finally got the test results back and...............................................
THE COPPER LEVELS ARE NORMAL!!!!!!!!!!!!!

All his liver values have also returned to normal! And there is only "very mild non specific cell swelling" in his liver now!

The summary of the report:
"Soter's followup liver biopsy results would indicate that the therapy for his copper storage hepatopathy has effected a very positive result virtually normalizing his histopathology and copper level results"



And the icing on the cake is that his blood sugar levels seem to not only be stabilizing but normalizing too! Before his blood sugar levels were always in the 2.5 to 3.0 range with drops as low as 1.5. For the past month, his blood sugar has been between 4.0 and 5.0 - perfectly normal!

I still can't believe it, my guy is a walking, breathing miracle and must have his very own guardian angle looking out for him. His results have been so amazing that the specialist has asked to write a paper on him.

So now it's on to maintenance therapy. We've worked out a continuing treatment plan for him to continue to manage the disease. All of his supplements stay the same. We've started very slowly reducing the Cuprimine from 2 pills a day, down to 1 pill a day and next week down to 1 pill every 2 days. He has bottled water and we are going to start alternating his food between the prescription food and a specially formulated homemade diet consisting of rice, yogurt, canola oil, special supplements and roasted goat of all things! Our first goat arrives next week and the supplements will be here in 2 weeks. And I think I'd better order a rice cooker lol! Treats consist of little cubes of cheese, dehydrated apples and dehydrated beef (sirloin only as it has the lowest fat content).

It's become a running joke among our friends and family that we eat the cheapest ground beef and Soter gets sirloin along with "what's for dinner tonight? Kraft Dinner, I didn't have time to cook for you, I was too busy cooking for Soter!" One of our smart-ass friend even sent us a month supply of Kraft Dinner lol!

He'll have his liver values rechecked every 2 months for the next next 6 months just to make sure he's handling the Cuprimine reduction okay and if everything continues to be normal then we can reduce the blood work to every 4 to 6 months.

We're living with the epilepsy as best we can. The vets and specialists are split on whether or not to treat it with the majority saying no. As long as he doesn't have more than one seizure a month they are considering it "well managed" all things considered. The seizures are usually one to two months apart, this summer was an anomaly. We do have the emergency rectal Valium just in case but for obvious reasons, they don't want to tax his liver with medication any more than absolutely necessary.

In spite of all this though, he is still my happy, hyper active, crazy boy. He's still rocking the nosework, getting into mischief, stealing everything that isn't nailed down so he can get a treat, tormenting the girls and being the light and joy of our lives.

Soters' 5th birthday - July 31/16
https://youtu.be/xvsOJ0Z1t0U

Racing around the yard this morning
http://youtu.be/fSe_4slG3Tk

Last edited by melbrod; 11-21-2016 at 02:27 PM.
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post #2 of 11 (permalink) Old 10-30-2016, 01:36 PM
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awesome news, the video of him racing around the yard brought a smile to my face. I wish Soter continued good health
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post #3 of 11 (permalink) Old 10-30-2016, 01:44 PM
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Thanks for sharing such wonderful news!
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post #4 of 11 (permalink) Old 10-30-2016, 06:27 PM
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Wonderful news! So happy for you and Soter!
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post #5 of 11 (permalink) Old 10-30-2016, 07:35 PM
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labor of love-) keep up the great work and keep going.
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post #6 of 11 (permalink) Old 10-30-2016, 11:10 PM
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Great news hugs to all throw in some rays too can't hurt.
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post #7 of 11 (permalink) Old 10-31-2016, 08:15 AM
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Wonderful news! So very happy for Soter and you. Awesome that your church helped out with him.

Love the videos!
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post #8 of 11 (permalink) Old 10-31-2016, 09:44 AM
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I'm overjoyed to hear such a positive update! Go Soter Go! I don't know what's making this miracle happen either, but I can only assume your dedication to your boy plays a large part, he's a very lucky dog to have you guys for parents!

The Red Devil Diva & Her Shamelessly Obedient Human
Bubba: Allergy King and Chief of Naps
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post #9 of 11 (permalink) Old 10-31-2016, 07:33 PM
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Really happy to hear the positive update. What a wonderful community of support you have, too!


DSC_0133
by Shanoa Delta, on Flickr

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post #10 of 11 (permalink) Old 11-01-2016, 10:28 PM Thread Starter
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Thanks everyone. Soter and I have a deal, he'll never give up and
I'll never give up him, we're a team!

Does anyone know how one is supposed to roast goat
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post #11 of 11 (permalink) Old 11-21-2016, 02:19 PM
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Quote:
Originally Posted by ObeytheDobies View Post
Thanks everyone. Soter and I have a deal, he'll never give up and
I'll never give up him, we're a team!

Does anyone know how one is supposed to roast goat
I'm late, but I'm so glad your boy is doing better!

I work as a chef if you still need an easier way to break down and/or roast your goat, let me know! Happy thanks help

🐾try to be the person your dog thinks you are🐾

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