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post #1 of 27 (permalink) Old 06-24-2016, 03:55 PM Thread Starter
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Exclamation Emergency! Please Help!

If you can, please help! The manufacturer in Canada of Soter's medication has suspended production with no estimated return to production date. We have enough pills left for 20 days then we're out. We've been calling all across Canada and have checked the online pharmacies but there is nothing.

The medication is called Cuprimine

Please, please, please if anyone can call around and check for us to see if anyone has this medication. Our vet will call/fax/email the prescription in. A friend has a U.S.post office box - we'll pay for everything he just needs this medication.

Oh god I can't lose him too!
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post #2 of 27 (permalink) Old 06-24-2016, 04:30 PM
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I've never used the website before, but it looks like online prescription drugs . com has it on their site.

Looks like a b c pet meds . com also has it.

Last edited by eighmie; 06-24-2016 at 04:36 PM. Reason: added another website
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post #3 of 27 (permalink) Old 06-24-2016, 04:37 PM
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I emailed my vet and told them I'd pay to over night it if they have it! Then asked for leads if they didn't. Let's cross our fingers!
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post #4 of 27 (permalink) Old 06-24-2016, 04:54 PM Thread Starter
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Still desperately trying to find some - no luck yet

Eighmie, Online prescription drugs.com has a generic version from Singapore, I don't think I can trust that and BC pet meds has liquid Cuprimine for removing copper from aquarium water

Thank you so much for looking for me, Gretchen I'll keep my fingers, eyes and toes crossed

I think the best bet is going to be human pharmacies
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post #5 of 27 (permalink) Old 06-24-2016, 05:01 PM
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My vet had nothing sorry.
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post #6 of 27 (permalink) Old 06-24-2016, 05:02 PM
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Quote:
Originally Posted by ObeytheDobies View Post
Still desperately trying to find some - no luck yet

Eighmie, Online prescription drugs.com has a generic version from Singapore, I don't think I can trust that and BC pet meds has liquid Cuprimine for removing copper from aquarium water

Thank you so much for looking for me, Gretchen I'll keep my fingers, eyes and toes crossed

I think the best bet is going to be human pharmacies
I don't see that on the ABC pet meds site, I see tablets from "Manufacturer:
Formulation:Alliance Pharma" But, I trust you better than me, as I know nothing about these meds. I would call my vet for you, but she's on a temporary leave right now. I'd check with the oncologist that we see, but for Indy's meds, they are charging 4x - 10x times more than any other place. That said, I can ask if you'd like; their overcharging has just left me feeling quite bitter. Just let me know.

When I look at goodrx (what I use, as I have a high deductible plan), it shows 6 capsules for $1,577.75 - and I'm guessing that's completely out of the question?
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post #7 of 27 (permalink) Old 06-24-2016, 05:05 PM Thread Starter
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I now finally understand how people get scammed. I never did before but now I do. The one company I called said they could get this drug out of India and wanted my bank account info. I'm just desperate enough that for a moment I actually considered it
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post #8 of 27 (permalink) Old 06-24-2016, 05:06 PM
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I just reached out to a few FB groups that I trust! Fingers crossed!
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post #9 of 27 (permalink) Old 06-24-2016, 05:09 PM
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Quote:
Originally Posted by ObeytheDobies View Post
If you can, please help! The manufacturer in Canada of Soter's medication has suspended production with no estimated return to production date. We have enough pills left for 20 days then we're out. We've been calling all across Canada and have checked the online pharmacies but there is nothing.

The medication is called Cuprimine

Please, please, please if anyone can call around and check for us to see if anyone has this medication. Our vet will call/fax/email the prescription in. A friend has a U.S.post office box - we'll pay for everything he just needs this medication.

Oh god I can't lose him too!
Is there a specific dosage? I'll try calling a few clinics on Monday and see if they have anything.


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post #10 of 27 (permalink) Old 06-24-2016, 05:12 PM
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Not sure how helpful any of it is but I found these....Hoping so much for you to find some and keep your boy healthy!

https://www.planetdrugsdirect.com/drugs/cuprimine

Buy Cuprimine (D-Penicillamine) 250mg

Cuprimine 250 mg Price Comparisons - Online Pharmacies and Discount Coupons

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post #11 of 27 (permalink) Old 06-24-2016, 05:14 PM Thread Starter
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I just got off the phone with ABC pet meds, much easier calling. They don't actually have anything but can get a generic version out of India. I just don't know what to do, you hear so many horror stories about fake medications and wrong medications. I read somewhere that there is no generic version!

I'm panicking and can't think straight right now. Someone tell me what to do!
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post #12 of 27 (permalink) Old 06-24-2016, 05:16 PM
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Pet place.com and abcpetmeds.com try those!
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post #13 of 27 (permalink) Old 06-24-2016, 05:21 PM
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Maybe the Singapore is worth a shot if worse comes to worse?
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post #14 of 27 (permalink) Old 06-24-2016, 05:47 PM
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Penicillamine (Depen®, Cuprimine®)

I'm sure you have most likely already seen this page in the link above?
I don't really know much about medications, however it was saying that Penicillamine (depen, cuprimine) was registered for human use only. So could that possibly mean you could get a perception from a doctor's office/ pharmacy and use it for Soter?
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post #15 of 27 (permalink) Old 06-24-2016, 05:53 PM
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EDIT: if something like that will work I could ask a friend whose a doctor and see if they can do anything??
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post #16 of 27 (permalink) Old 06-24-2016, 05:55 PM
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Someone online suggested phenobarbital if it's life or death. I don't know anything I'm just passing along the advice.
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post #17 of 27 (permalink) Old 06-24-2016, 06:03 PM
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Obey the Dobies - we used to give this to Jossie for her copper storage disease. My bottle is Penicillamine 300 mg capsules (now expired). Our supplier was Diamondback Drugs (866)646-2223 7631 E. Indian School Rd Scottsdale, Arizona 85251

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post #18 of 27 (permalink) Old 06-24-2016, 06:37 PM
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post #19 of 27 (permalink) Old 06-24-2016, 06:52 PM
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If you have a good relationship with your primary health care physician, thats someone I would contact. When our boy Butcher (RIP) was diagnosed with DCM, we got his meds though our doctor as it was cheaper. Not really kosher, but whatever...

I trust that you will find a med source soon. Best of lock.

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post #20 of 27 (permalink) Old 06-24-2016, 07:17 PM
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post #21 of 27 (permalink) Old 06-24-2016, 07:43 PM Thread Starter
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GRETCHEN YOU ARE MY HERO!!!!!

70 pills paid for and on the way from Cloverdale Pharmacy! Unfortunately they are unable to get anymore as they are getting the same message as everywhere else - the manufacture has suspended production but at least we have 70 more pills! That's 35 more days!

I think this is the way it's going to go, we need to find any pharmacies that have left over pills in stock and buy those. If we can get him enough to last until the end of October then he goes for his follow up biopsy. If his copper level are significantly reduced then he can drop down to 1 pill every 2 days. But right now he has to be on 2 pills a day to get the copper levels down to where they're not life threatening anymore.

Oh my god what would I do without this site and all you guys thank god for DT!
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post #22 of 27 (permalink) Old 06-24-2016, 07:49 PM
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You might try a compounding pharmacy. It would be a generic version of the drug though and compounded at a dose that is not currently available in the brand name form. It would be important to ask if the pharmacy does 3rd party testing of drug they compound and not rely on a certificate of quality from overseas. If they did USA third party testing on overseas supplied drug, I would be fine with that.

Roadrunner pharmacy in AZ does third party USA testing on overseas supply according to their website. You might try them. Diamondback in AZ and Wedgewood in NJ show the Penicillamine generic. Google search Penicillamine and compounding

Are there other chelating drugs that can be used? Doing a crash course google search here and not comprehensive, but what about Trientine Dihydrochloride, Depen, Syprine, Galzin, if Cuprimine is not available?

Contact Wilson disease.org as this disease uses Cuprimine and those mentioned above for treatment of copper storage and may be able to provide assistance to source the drug or equivalent
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post #23 of 27 (permalink) Old 06-24-2016, 08:25 PM
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Check with Drs. Foster & Smith. Prescription Products: About the Drs. Foster & Smith Pharmacy It's not on their list, but you can ask if they could get it. They used to do compounding. Don't know if they still do.


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Good job Karen!
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post #25 of 27 (permalink) Old 06-24-2016, 10:07 PM
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Quote:
Originally Posted by ObeytheDobies View Post
GRETCHEN YOU ARE MY HERO!!!!!

70 pills paid for and on the way from Cloverdale Pharmacy! Unfortunately they are unable to get anymore as they are getting the same message as everywhere else - the manufacture has suspended production but at least we have 70 more pills! That's 35 more days!

I think this is the way it's going to go, we need to find any pharmacies that have left over pills in stock and buy those. If we can get him enough to last until the end of October then he goes for his follow up biopsy. If his copper level are significantly reduced then he can drop down to 1 pill every 2 days. But right now he has to be on 2 pills a day to get the copper levels down to where they're not life threatening anymore.

Oh my god what would I do without this site and all you guys thank god for DT!
I can not take the credit. It was friends of friends in the Doberman community and our community is a strong one!!!!

The advice came from Jane Smith in Canada I BS you not!
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