Dexter Has Masticatory Muscle Myositis - Page 2 - Doberman Forum : Doberman Breed Dog Forums
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post #26 of 50 (permalink) Old 10-01-2012, 10:49 AM Thread Starter
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Quote:
Originally Posted by RedFawnRising View Post
I've been thinking of you guys.

I'm sorry to hear the MMM diagnosis is now confirmed, but at least you do have an answer.

I'm going thru tx of a mystery autoimmune thing with one of mine, currently. After unnameable $$$ diagnostic$, still no answer, so we are just treating, keeping comfortable, and praying, ya know?

Still, woulda been nice if your answer had been something less sucky, huh?

He is such a handsome boy, you know I have such a soft spot for the red boys.

Give 'im an ear rub for me, will ya?

Hugs to you.
Thank you so much! Oodles of ear rubs have been given

Ugh, these autoimmune things just suck. I do hope you get answers soon. It's awful not knowing, at least an answer (even a crappy answer) leads to direction. I hope yours is figured out soon, you will definitely be in my thoughts.
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post #27 of 50 (permalink) Old 10-01-2012, 11:06 AM Thread Starter
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Another update on Dexter:

We had a checkup with the vet on Saturday. When the vet tried to open Dexter's mouth, he was worried there was scar tissue keeping him from full flexion. Turns out, Dexter just didn't want to open his mouth and was fighting it; he can open his mouth just fine - but only when he wants to do so

We've dropped his prednisone dosage again. In order to get him off the prednisone quicker, we started another med - Azathioprine. Since everything to treat MMM comes with potential negative side effects, we've taken blood work for a baseline to see how Dex is handling it. We're keeping a close eye on him and have another check up in two weeks.

Since starting the pred, he's developed several bumps on his back and sides. The vet aspirated them and said they appear to be cystic, but there's no inflammation present. We put him on an antibiotic and are keeping an eye on those as well.

Dex is a great dog, and all things considered, he's doing well - but all of these meds are definitely affecting his personality. He's destroying toys faster than anything I've ever seen from him. All he wants to do is chew chew CHEW! He's destroyed a few everlasting treat balls, Kong's and orbee baseballs. The baseballs were one of his favorites, but he can't be trusted with them right now. At $8-$10 a piece, I generally like toys to last more than 30 seconds DH suggested we give him an empty milk jug (he did this for our girl Indy when she was a pup), so we gave that a try.

Dex had SO much fun and was SO incredibly proud of himself and his destruction. He did not want to put his new toy down, no matter what else needed to be done


Please keep us in your thoughts; I really appreciate it, and we definitely need it.
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post #28 of 50 (permalink) Old 10-01-2012, 11:22 AM
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O.M.G.

Funny boy, with his milk jug prize. That's the pranciest pee-pose I've ever seen

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post #29 of 50 (permalink) Old 10-01-2012, 11:47 AM
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He's multi-tasking.
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post #30 of 50 (permalink) Old 10-01-2012, 01:10 PM
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Amy, that pic of Dex is just hysterical. Do you need donations of Milk Jugs? I can bring some Saturday.

I am so sorry you are having to go through all of this, seems like it is just one thing after another with that poor boy.

Hugs to you, Colin, Dex and the girls.

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post #31 of 50 (permalink) Old 11-29-2012, 07:46 AM Thread Starter
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Update!

As far as the MMM goes, Dexter is doing really well. He's been off of prednisone for about three weeks and is slowly returning to his normal self. He lost some weight while on the meds and has gained a bit since the prednisone stopped. He's still completely nuts for food (see waiting for dinner photo below) and he's doing better with balls again (see destruction photo below). He's still taking Azathioprine for now and we'll start weaning him off of that soon. All blood work shows that he's handling the meds okay.

Shortly after the MMM started, Dexter developed some bumps on his back. The vet aspirated them, they appeared cystic without inflammation, so we did a round of antibiotics and they went away. The bumps have returned and the vet thought it would be best to do a biopsy to see what we're dealing with. I dropped my big guy off at the vet this morning and the procedure will be done around 10:00am. I'll update as soon as I hear how he's doing. Please keep us in your thoughts that everything is okay.

Now for some pictures! I don't know why some of my pics end up sideways, but it's annoying

Waiting for Dinner:


Destruction!!
He pretty much destroyed every toy in the house. I've spent the last few weeks replenishing the stock



Juice Bottle - nom nom nom!


Milk Jug! nom nom nom
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post #32 of 50 (permalink) Old 11-29-2012, 08:00 AM
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Amy, so glad to hear that Dex is doing better. He looks really good. (I always seem to get the sideways pictures too -- one of life's mysteries, I guess :-)

Hugs to you, Dex and the girls.

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post #33 of 50 (permalink) Old 11-29-2012, 08:19 AM
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OMG, he is a beautiful dog! I am so happy to hear he is improving.
What is the long term prognosis for MMM. Can it be put completely into remission since you caught it early?



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post #34 of 50 (permalink) Old 11-29-2012, 08:48 AM
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a pup from me had MMM when she was just over a year old, now it 5 and on low dose steriods, she was never able to be taken off them. Friends with goldens had 2 girls from the same litter both come down with it too but both were only on steriods for a short time. It is unfortunate but thankfully not life altering. Hope Dexter recovers quickly!

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post #35 of 50 (permalink) Old 11-29-2012, 09:15 AM
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The drool bubbles are awesome. So glad to hear that he's doing well.


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post #36 of 50 (permalink) Old 11-29-2012, 10:40 AM Thread Starter
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Quote:
Originally Posted by Dobes&Hounds View Post
OMG, he is a beautiful dog! I am so happy to hear he is improving.
What is the long term prognosis for MMM. Can it be put completely into remission since you caught it early?
Thank you!

My vet feels pretty confident that we caught it and treated it quick enough that it won't return. We keep an eagle eye on him though. I'm also doing "physical therapy" for him - several times a day, I open his mouth as far as it will go. He's stopped resisting me and will let me open his mouth anytime I try. It probably helps that he's rewarded with freeze dried liver every time.

Quote:
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a pup from me had MMM when she was just over a year old, now it 5 and on low dose steriods, she was never able to be taken off them. Friends with goldens had 2 girls from the same litter both come down with it too but both were only on steriods for a short time. It is unfortunate but thankfully not life altering. Hope Dexter recovers quickly!
Thank you! His last decrease of the prednisone was 5mgs every other day and we haven't seen any symptoms since stopping them. We're really hopeful that those symptoms don't ever return, but I've developed a plan with the vet, just in case.

Quote:
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The drool bubbles are awesome. So glad to hear that he's doing well.
I always thought that a drooling dog would totally disgust me, but every time he starts drooling or blowing bubbles, I just start laughing. He always looks SO serious too, which makes me laugh even more.

Any chance you can work your "mod-magic" and flip that picture for me?
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post #37 of 50 (permalink) Old 11-29-2012, 10:43 AM
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Quote:
Originally Posted by moona View Post

Any chance you can work your "mod-magic" and flip that picture for me?
I can't figure out how to rotate it. Maybe PM greenkouki?


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post #38 of 50 (permalink) Old 11-29-2012, 10:44 AM Thread Starter
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Another Update!

I got a call from the vet and Dexter did fabulous with the bump removal. The vet said he took the biggest one and a smaller one that was right next to it. The incision is around an inch and he has a few stitches for us to keep an eye on.

The vet had mentioned this morning that he might need a sedative, depending on how Dexter handled things; but didn't anticipate it would be necessary because of how easy Dex is to work with. Dex was a champ and didn't require the sedative.

Biopsy results should be back in a week. I'll post results as soon as I have them.
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post #39 of 50 (permalink) Old 11-29-2012, 10:46 AM
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Fingers crossed.
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post #40 of 50 (permalink) Old 11-29-2012, 11:15 AM
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So glad to hear he's doing well! And I love all the pics of your handsome boy. He's a charmer in person, I'm sure.

*fingers crossed* for good biopsy results.




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post #41 of 50 (permalink) Old 11-29-2012, 01:37 PM
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Wishing for the very best... How exhausting this all must be.. He's such a beautiful boy. many prayers and DoberVibes for everyone.
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post #42 of 50 (permalink) Old 01-04-2014, 04:13 AM
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I think my dog Hannah has masticory myositis. The muscle wasting on her head has been going on for a long time now. She doesn't have any trouble opening her jaw, but I've noticed recently that when she drinks water she is making a big mess, spilling water all over outside the water bowl.

My vet told me not to worry about it, she's not in any pain, etc. and wasn't having any trouble with her jaw. But I think it's time for him to check her out and see about medication.

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post #43 of 50 (permalink) Old 01-07-2014, 09:27 AM Thread Starter
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I'm so sorry to hear about Hannah. She does look like she has a significant amount of muscle wasting in her head and her jaw.

The tests to check for MMM were pretty pricy, but totally worth it so you know what to treat. If I'm remembering right, they did two tests, a blood serum and an antibody test and I think it was around $500.00. I can't remember the exact cost, but let me know if you'd like me to dig out the folder and see.

Please keep us posted on test results and how she does with any prescribed meds.

Hugs to you and Hannah.
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post #44 of 50 (permalink) Old 01-07-2014, 01:09 PM
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This just broke my heart..I have lupus and do the predinsone...It makes you feel awful..
It has so many side effects....But it does make a lot of problems go away and you feel better...sending you much love and healing prayers...Your dog is just beautiful.
I'm glad it's got a good owner. I know your doing everything you can. Hang in there.
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post #45 of 50 (permalink) Old 01-07-2014, 07:04 PM
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Hi and happy new year! Hannah6 - you need to find another vet - masticatory myositis is a very specific disease process, and it is deadly if not properly managed. If Hannah has had this for quite a while and dribbles when she drinks but has no problem eating or opening her mouth, then it is NOT MM. MM will cause a dog to no longer be able to open its mouth if not treated, and the dog will starve to death. It IS painful - the way we learned about it was that Annie started to refuse snacks (a SURE issue for her!), and would open her mouth in a strange way, as if trying to "unstick" it or something. We didn't know what to think...also when I learned that dogs do no get tetanus/lockjaw. Muscle wasting can be from other issues, so please explore! Meanwhile - Annie had relapses each time she was weaned off the prednisone, so she is now on permanent low-dose maintenance for life. She has no pain, she face fights with Odie enthusiastically, eats like a horse, chomps bones with vigor!


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post #46 of 50 (permalink) Old 01-08-2014, 08:54 PM
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What other issues could muscle wasting on the head and some issues with the mouth, such as slopping water? I don't think every single dog with MM ends up with their jaw locking, at least not right away. I don't think the fact that she can open her mouth rules out MM. I have done a lot of research. I haven't found anything else that causes these symptoms.

I see Cushing's Disease mentioned, but I don't think that's what it is. She's had it for a long time, too. Years. The issues with slopping water are new, so I think maybe the disease is progressing. We will get it fixed before her jaw locks up!

Last edited by hannah6; 01-08-2014 at 09:07 PM.
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My other dog, Greta, pictured in my signature, just died this past Saturday. Of Dilated Cardiomyopathy. She had been doing great the past two months, on all kinds of meds and then all of a sudden she just deteriorated. Took her to emergency, they couldn't get her stabilized. My heart is broken.
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post #48 of 50 (permalink) Old 01-09-2014, 12:20 AM
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I am so sorry for your loss.
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post #49 of 50 (permalink) Old 01-09-2014, 01:24 AM
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I'm really happy to see how well Dexter is doing. He is looking super good...and quite handsome, too, even with bubble breath.

I have trouble with avatar pictures turning sideways. It's a forum problem. Maybe bring it up on the site news forum and other people will join in. He won't bother if just one person complains.

I have trouble when backing out, it goes to an advertisement page and guess it gets a hit and generates money. I've complained, but he says no one else has the problem. Sent screenshots and he said he sent it on. I've since discovered is forum generated, so don't guess they mind the hits. But it seems to have improved somewhat lately. Not totally gone, but not at every backout either.

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post #50 of 50 (permalink) Old 01-14-2014, 09:13 PM
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Quote:
Originally Posted by lolonurse View Post
Hi and happy new year! Hannah6 - you need to find another vet - masticatory myositis is a very specific disease process, and it is deadly if not properly managed. If Hannah has had this for quite a while and dribbles when she drinks but has no problem eating or opening her mouth, then it is NOT MM. MM will cause a dog to no longer be able to open its mouth if not treated, and the dog will starve to death. It IS painful - the way we learned about it was that Annie started to refuse snacks (a SURE issue for her!), and would open her mouth in a strange way, as if trying to "unstick" it or something. We didn't know what to think...also when I learned that dogs do no get tetanus/lockjaw. Muscle wasting can be from other issues, so please explore! Meanwhile - Annie had relapses each time she was weaned off the prednisone, so she is now on permanent low-dose maintenance for life. She has no pain, she face fights with Odie enthusiastically, eats like a horse, chomps bones with vigor!
Actually, my vet never said she had masticatory myositis. That was my diagnosis after reading on the internet. I just took her to the vet yesterday and he drew blood and is sending it off for the 2M antibody test...to rule out masticatory myositis. But that is mainly to reassure me, I think, because he doesn't think that's what it is. I forget his exact explanation, something to do with nerves, but he said there is no treatment, dogs live out their lives with it and function just fine. He talked about tumors, but said with tumors only one side is affected, usually. He does not believe it's a tumor. Next time I talk to him I'll try to remember what he is saying about the nerves...nerve deterioration or something, so I can explain what he said more clearly.

He said just what you said...if she's had it this long and has no problem eating or opening her jaw...it's not MM. However, we will rule it out with the test.

I asked him if he'd known dogs that have this nerve condition that causes this and they live to a ripe old age with it and die of something else, and he said yes. The condition she has is not fatal. Nor is it painful, and they maintain use of their jaws.

The difference between my vet (he's in his 50's) and some of the young vets just out of vet school, is that he's actually SEEN all these various conditions. So what I'm searching for on the Internet or speculating about on forums, he already knows. He doesn't have to look it up.
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